> At a Glance
> – Audrey Tyrell, 13, has Usher syndrome and will gradually lose her sight
> – She revealed her handwritten bucket list on This Morning on Jan. 6
> – Stranger Things actress Nell Fisher surprised her with West End tickets
> – Why it matters: Her story spotlights living with a rare genetic disorder and the urgency to make memories
Thirteen-year-old Audrey Tyrell turned a devastating diagnosis into a mission to see the world-before her vision disappears.
A Race Against Time
Audrey was 10 when doctors at London’s Great Ormond Street Hospital confirmed she has Usher syndrome type 2, a rare inherited condition that brings moderate-to-severe hearing and vision loss plus balance issues. She already wore hearing aids as a baby because of linked bilateral sensorineural hearing loss.
Her mum, Tracey, says there’s no set timeline for when her eyesight will fade, so the pair refuse to wait. “We didn’t want to sit around… wishing we’d done certain things,” Tracey told This Morning viewers.
Adventures Ticked Off and Still to Go
Audrey’s colourful list is part roadmap, part lifeline:
- Done: Eiffel Tower, cat café, Frozen the Musical, rainforest trek
- Still waiting: Vatican City, Christ the Redeemer statue, marathon, cruise, swim with dolphins
A Surprise From the Upside Down
Audrey’s love of Stranger Things got a real-world twist when Nell Fisher-Holly Wheeler in the show’s final season-walked on set. Nell handed over tickets to Stranger Things: First Shadow on the West End, adding a fresh line to the bucket list.
Key Takeaways
- Usher syndrome type 2 means Audrey’s sight will worsen unpredictably
- Her family’s proactive approach keeps experiences ahead of decline
- A TV surprise delivered a dream encounter and new adventure
Audrey’s story is a reminder that sometimes the clearest vision is making every moment count.
